Living With a Urea Cycle Disorder

Watch Denise and Lupe talk about what it’s like
living with a rare disease that no one can see

Invisible Disease

If you or a loved one are diagnosed with a urea cycle disorder (UCD), you should know that you’re not alone. There are many resources available to you and your family, including UCD education, management support, and a community ready to help and guide you.

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Urea Cycle Disorder Tracker

Tracking food, exercise, and symptoms plays an important role in helping to manage ammonia levels. Some people like to write down this information in a notebook, while others use digital apps to keep track. The best method to choose is the one that will be the easiest for you to use throughout the day.

A UCD Success Story: Lupe & Isabel

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Success is different for everyone. Learn how it has changed over time for Lupe and her daughter, Isabel.

Lupe & Isabel