Urea Cycle Disorder Resources
Being diagnosed with a urea cycle disorder (UCD) is the first step on a lifelong journey, and it helps to know there are others who have been in the same situation. We understand and have put together resources to help you live a full life with a UCD. Making decisions about care is the next step in learning how to manage a UCD. Sometimes it can feel daunting, but seeing questions that other people with a UCD have asked and learning the answers can help you better manage your UCD.
“Success with a UCD is possible.” Denise describes
how she sets goals for living her best life with a UCD.
My Story: Denise
Download These UCD Resources
A fact sheet that explains what UCDs are and some tips for how to manage it.
A guide for caring for someone with a UCD, explaining how to help in various life situations and what to do if there is an emergency.
