Invisible Disease

Invisible Disease

Hear from others in the community discuss their experience with others judging them.

  • Overview
  • Transcript

Living with an invisible disease comes with challenges, from managing symptoms to facing skepticism.

I don't deal with skeptics.

People don't understand if you're out for the day, I have to stop and rest.

And I've had people tell me, well, why you don't look sick.

It doesn't matter if I don't look sick or not.

I know I don't feel well and I need to sit down for a minute.

You have to stand up for yourself.

Just because Isabel has a disease that you can't see doesn't mean that she can't live a whole life.

She has many restrictions that other people find odd.

But this is a real medical condition and if you don't believe it then I, I, I, there's nothing I can do to convince you.

This is not a made up illness.

It's real.

All the hospitalizations that she's had, even after diagnosis are real.

I'm not defined by my disorder, but it's part of who I am.

This isn't something that I can play around with.

It's very serious.

This is real.

This is why I do what I do.