Invisible Disease
Invisible Disease
Hear from others in the community discuss their experience with others judging them.
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Overview
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Transcript
Living with an invisible disease comes with challenges, from managing symptoms to facing skepticism.
I don't deal with skeptics.
People don't understand if you're out for the day, I have to stop and rest.
And I've had people tell me, well, why you don't look sick.
It doesn't matter if I don't look sick or not.
I know I don't feel well and I need to sit down for a minute.
You have to stand up for yourself.
Just because Isabel has a disease that you can't see doesn't mean that she can't live a whole life.
She has many restrictions that other people find odd.
But this is a real medical condition and if you don't believe it then I, I, I, there's nothing I can do to convince you.
This is not a made up illness.
It's real.
All the hospitalizations that she's had, even after diagnosis are real.
I'm not defined by my disorder, but it's part of who I am.
This isn't something that I can play around with.
It's very serious.
This is real.
This is why I do what I do.