Staying Active With a UCD
Living with a urea cycle disorder (UCD) doesn’t have to keep you from enjoying your life and doing the things you love if you learn how to manage it. When it comes to exercise and travel, here are some tips to help you stay active and on the go.
Healthy Fun for UCD Families
Take it easy when exercising
Whether jogging through the park or playing tag on the playground, intense physical exercise causes the body to use lots of energy. Your body uses stored protein to create this energy, and using too much of that stored protein can cause ammonia levels to rise to unsafe levels.
Amy, an adult patient living with a UCD, listens to her body and her doctor so she doesn't push herself too far when exercising. “I worked with my doctor and we came up with a light running program that doesn't cause my ammonia levels to go up,” she says.
School-aged children who can't join in gym activities or race around during recess can feel left out. One mother worked with her daughter's school and came up with an easy solution. “During those times when it's too hot to run around on the playground, she gets to pick a classmate who can play games with her indoors,” she explains. “The kids think it's cool to be picked to hang out with her.”
You can have fun with these low-intensity activities. Remember to always talk with your doctor before starting any activity.
- Swimming
- Volleyball
- Golf
- Table tennis
- Canoeing
- Bike riding
- Walking
- Bowling
- Yoga
Ammonia levels are different for every person living with a UCD. It’s important to talk to your doctor before starting any activity or exercise program.
Preparation for Travelling With a Urea Cycle Disorder
Use these tips to help make the process of travelling with a UCD as smooth as possible.
Before your trip
Be prepared in the event of an emergency
Coming and Going
If you’re travelling by plane
- The carry-on bag size limit is airline specific, but you are usually allowed a bag up to the size of a small rolling suitcase and a purse or backpack.
- Carry-on luggage will be X-rayed and/or searched when you go through security. Liquids need to be in a litre-sized zip-top bag and may not exceed 100 mL (3.4 oz), though exceptions are made for things like liquid medicines.
Prepare for security. You need your boarding pass and photo ID. When going through security, you usually need to take off your shoes and jacket and empty your pockets.
- If you are travelling with medicines, be prepared to remove them from your bag and explain what they are. You may also need to show other medical items, like any supplies needed to take your medicine. Many people also bring a copy of their prescription or a note from their doctor.
- Medicines, baby formula and food, and breast milk are allowed in carry-on bags in reasonable quantities over 100 mL (3.4 oz) and are not required to be in your litre-sized bag of liquids. Tell the agent about any larger liquids you have, as they may need to open these items to do additional screening.
TIP: You can’t bring beverages through security, so bring an empty reusable bottle or plan to buy water once you get through.
If you’re travelling by bus
