Take the Ammonia Survey

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Your Results

Bring the survey results to your next visit with your healthcare team. You can also use the tips below to start talking to your healthcare team about your urea cycle disorder (UCD) and ammonia management.

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Talking to Your Healthcare Team

The more you share with your healthcare team about your UCD, the more your healthcare team can help. Use these tips to start the conversation:

Share your concerns. Don’t be afraid to tell your healthcare team if you’re worried about your health.

Don’t be embarrassed. If you don’t understand, ask for a clear explanation because it’s better to know than to leave confused or unsure.

Be clear. Try not to say, “I don’t feel right.” Be specific. For example, “I have severe headaches after eating certain foods.”

Questions to Ask Your Healthcare Team

How am I doing compared to my last appointment?

How often should I have my ammonia level checked?

What are my options to help control symptoms related to my urea cycle disorder?

Are there risks or side effects with taking any of these medicines?

Ammonia Survey

The ammonia levels that cause symptoms are different for every person living with a urea cycle disorder (UCD). What people have in common is the need to safely manage their ammonia levels. Take this quick survey to see how you’re managing your symptoms.