My Story: Denise

Hear Denise’s story about getting her UCD diagnosis when she was pregnant.   

  • Overview
  • Transcript

Denise was diagnosed as an adult and faced challenges, including pregnancy with UCD. With careful management, she continues to live life fully.

I was first diagnosed with AUCD when I was 25.

I went into liver failure when I was 20 weeks pregnant.

A win for me was getting to the end of my pregnancy and having my son.

That wasn't a given that he was going to be here.

A win for me today is if I can make it several months without getting sick, if I can make it 6 months with no ER visits, no emergency trips up to the hospital.

Just because I have a UCD doesn't mean I can't be a mom, doesn't mean I can't be a friend, doesn't mean I can't go out.

I just need to manage what I'm doing so that I'm able to do what I want to do.

My name is Denise and I am living with a UCD.

Success with a UCD is possible.